A survey is being conducted by investigators at the UCSF Benioff Children’s Hospital Oakland. Over the past 10 years it has become clear that patients with Thalassemia often have nutritional deficiencies. These deficiencies may be related to an unbalanced food intake. Unfortunately, accurate information on nutrition is rarely a topic of discussion during medical visits due to so many other issues that the patients want to discuss.
In order to better serve you (our patients), we have developed a survey to gather information on your beliefs about nutrition, where you get your nutritional information from, and who influences your decision making. The information gathered will be anonymous, therefore please answer truthfully. Your answers will not influence the medical care you receive in any way. This survey is intended for adults only (>18 or older). If you are a younger patient who would like to participate in the survey, please talk to your parent.
For those of you who complete the survey and are willing to share your email address with us, you will be automatically entered into a drawing for one of three $100 Amazon Gift Cards.
The Survey will be closed on Monday, July 20th, so please respond before that date!
Thank you for your participation!
Nutritional Attitudes and Beliefs held by Patients with Thalassemia Survey:
www.surveymonkey.com/s/thalsurvey
Kind Regards,
Ellen Fung, PhD RD
Associate Research Scientist
UCSF Benioff Children’s Hospital Oakland
Ms. Rammeet Kaur
Thalassemia Patient
CHORI Summer Research Student Intern
Doris Duke Research Intern Fellow 1
