tag:blogger.com,1999:blog-10718820513018645222024-02-20T21:45:02.153-08:00Thalassemia.com NewsFrom the staff at the Northern California Comprehensive Thalassemia Center, Oakland, California (thalassemia.com)Unknownnoreply@blogger.comBlogger33125tag:blogger.com,1999:blog-1071882051301864522.post-29513321485656197162015-10-19T22:28:00.000-07:002015-10-19T22:29:57.880-07:00Responsible Testing Study seeks participants
Recombine Research: Participate in the Responsible
Testing Study
Recombine is a healthcare company focused on developing
genetic tests that empower individuals and families. Genetic tests can only
help families understand their risk for disease if the tests are able to
accurately and dependably detect disease. The IRB-approved Responsible Testing
study seeks to enroll individuals with Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-88960231738349464212015-10-07T14:31:00.005-07:002015-10-07T14:31:55.101-07:00New: UCSF Center for Maternal-Fetal Precision MedicineWe are collaborating with The Center for Maternal-Fetal Precision Medicine, a trans-disciplinary program designed to improve our understanding and treatment of patients with congenital anomalies and pregnancy complications. We aim to integrate resources and talent between scientists and clinicians to accelerate research and clinical trials of fetal and neonatal interventions, create stronger Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-2123843549000540092015-07-01T01:03:00.002-07:002015-07-01T01:03:31.691-07:00Thalassemia Nutrition SurveyA survey is being conducted by investigators at the UCSF Benioff Children’s Hospital Oakland. Over the past 10 years it has become clear that patients with Thalassemia often have nutritional deficiencies. These deficiencies may be related to an unbalanced food intake. Unfortunately, accurate information on nutrition is rarely a topic of discussion during medical visits due to so many other Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-6515919148527565922015-04-17T17:31:00.002-07:002015-05-26T20:33:45.491-07:00BAT Run 5K for thalassemia: Berkeley, Oct 31stAnonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-64359003574148961182015-04-17T17:21:00.001-07:002015-04-17T17:21:18.210-07:00Thalassemia Patient and Family Conference: Seattle, May 9th
You Are Cordially Invited
Thalassemia Patient and Family Conference
When: Saturday, May 9, 2015, 9:00am – 3:00 pm
Where: Pan Pacific Hotel Seattle
2125 Terry Avenue, Seattle, WA 98121
Panpacific.com
Hosted By:
Topics Covered:
Historical Perspective on Thalassemia and Chelation: Dr. Vasili Berdoukas, Children’s Hospital Los Angeles
Iron Physiology and Alloimmunization with Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-11849686879824037822015-03-09T17:41:00.005-07:002015-03-09T17:41:54.554-07:00Genetically Inherited Illness: The Lived Experience & Role of Clinicians Speaker Series
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The Office of Diversity & Inclusion
presents
Genetically Inherited Illness: The Lived Experience &
Role of Clinicians
Speaker Series
DONOR
POOLS & TRANSPLANTS in PEDIATRICS:
CLINICAL
& ETHICAL ISSUES & ADVANCES
including
THALASSEMIA with Dr. Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-81570489916481120442015-03-09T17:08:00.001-07:002015-03-09T17:14:57.100-07:006th Thalassemia Support Foundation Conference: April 18th, Los Angeles
Thalassemia Support Foundation (TSF)
in conjunction with Children's Hospital Los Angeles,
cordially invite you to:
The 6th Thalassemia Support Foundation Conference
Saturday, April 18th, 2015
Children's Hospital Los Angeles (CHLA)
4650 Sunset Boulevard, Los Angeles, CA 90027
with support from:
Cost &
RSVP
This
conference is FREE to all Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-81069425851826507852015-03-04T15:15:00.002-08:002015-03-04T15:15:31.312-08:00The 3rd Annual Bay Area Teen Science (BATS) College and Career Fair
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All Bay Area Middle and High
School Students are invited The 3rd Annual Bay Area Teen Science (BATS) College and Career Fairto:
A Day of Science,
Technology, Engineering, and Mathematics Activities, Talks, and Demonstrations
Date:
Saturday Math Thalassemia Outreachhttp://www.blogger.com/profile/17727185306352961544noreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-79987755305615976322015-02-25T21:45:00.001-08:002015-02-25T21:45:07.747-08:00Community Health Fair - Oakland - March 28thThalassemia Outreachhttp://www.blogger.com/profile/17727185306352961544noreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-18292963568653063902014-10-16T12:00:00.000-07:002014-11-18T02:28:27.896-08:00Thal at Cal: Nutrition DeCal, by Mohith Subbharao
Mohith Subbharao
For any person, nutrition and exercise are necessary to maintain a
healthy lifestyle and succeed in all aspects
of common day-to-day life. For someone with Thalassemia, these things
are even more imperative.
Without proper nutrition and regular exercise, the symptoms of
Thalassemia patients will only
get progressively worse. However, if Thalassemia patients can make Thalassemia Outreachhttp://www.blogger.com/profile/17727185306352961544noreply@blogger.com0Children's Hospital & Research Center Oakland, 747 52nd Street, Oakland, CA 94609, USA37.8370307 -122.2673237999999937.8338957 -122.27236629999999 37.8401657 -122.26228129999998tag:blogger.com,1999:blog-1071882051301864522.post-9360328483775455442014-10-14T19:32:00.000-07:002014-11-18T02:31:20.488-08:00Children's Hospital Tour - A Student's Experience, by Mohith Subbharao
Mohith Subbharao
A few weeks ago, I had the chance to tour the Children’s Hospital Oakland, specifically the Thalassemia
Comprehensive Center. It’s not how I usually spent my Friday afternoons, but it was without a doubt
a worthwhile experience. I left the hospital in awe of the hardships that Thalassemia patients
go through and inspired by the doctors who have worked to help with these Thalassemia Outreachhttp://www.blogger.com/profile/17727185306352961544noreply@blogger.com0University of California, Berkeley, Berkeley, CA, USA37.8718992 -122.2585399000000237.8468297 -122.29888040000002 37.8969687 -122.21819940000002tag:blogger.com,1999:blog-1071882051301864522.post-88756904344287531922014-10-10T21:14:00.001-07:002014-10-10T21:31:50.910-07:00Perspectives NewsletterThe new Summer/Fall 2014 edition of Perspectives, the
newsletter of the Northern California Comprehensive Thalassemia Center is available as a PDF and can be read online here.
If you would like a free print subscription to Perspectives, please contact Laurice Levine: Llevine@mail.cho.org or sign up online.
Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-51692886163644256562014-07-03T17:56:00.002-07:002014-07-03T17:56:56.039-07:0028th Annual BBQ Steak Dinner to benefit the Cooley's Anemia Fund
28th ANNUAL BBQ STEAK DINNER
SPONSORED BY
ICF Branch 108
and
THE SABATELLA FAMILY
for the
Italian Catholic Federation,
Los Angeles Archdiocese District
TO BENEFIT THE
COOLEY'S ANEMIA FUND
SUNDAY – JULY 20, 2014 4:00 P.M.
766 MONTEREY RD
SOUTH PASADENA
(626) 379-0629 / 372-7812
(CALL FOR RESERVATIONS AND/OR DIRECTIONS
by July 13th per favore!)
Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-53307362222855138862014-04-14T00:43:00.000-07:002014-04-14T00:43:09.091-07:00Heart 2 Heart Block Party April 26th
Dear EHI Committee Members and Community Partners,
On
Saturday, April 26, from 10:00 a.m. to 3:00 p.m., Heart 2 Heart will be
hosting a neighborhood celebration for the fourth anniversary of the
program’s Mobile Health Van. Along with door-to-door blood pressure
screenings, they will be offering several community resources, as well
as hosting a National Prescription Drug Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-64036326366111049152014-02-11T15:06:00.002-08:002014-02-11T18:20:06.471-08:00Are you looking for the perfect gift for your Valentine?Do
you have an hour to spare?
Would
you like to Save a Life?
If
you answered yes to any of these
questions, then please consider donating
blood in honor of Valentine’s Day? There is no better way to express love
to your Valentine than giving the gift of life.
There are four
types of transfusable products that can be derived from blood: red cells,
platelets, plasma and Laurice Levinehttp://www.blogger.com/profile/07014081372965466145noreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-26996287192537065142014-02-03T17:47:00.001-08:002014-02-03T17:49:18.672-08:00Thalassemia Patient and Family Conference 2014
The thalassemia patient/family conference held on January 18, 2014 at Children’s Hospital Oakland was a
success! Approximately 45 patients, families and professionals attended to hear experts speak on the following:
Thalassemia Care and Research Update:
Elliott Vichinsky, MD
Children’s Hospital & Research Center Oakland:
This is an embedded Microsoft Office presentation, Anonymousnoreply@blogger.com0747 52nd Street, Oakland, CA 94609, USA37.8368589 -122.2670590000000212.314824400000003 -163.57565300000002 63.3588934 -80.958465000000018tag:blogger.com,1999:blog-1071882051301864522.post-78800055161031930412013-12-20T16:40:00.001-08:002013-12-20T16:40:48.571-08:00Painted Turtle Camp 2014
Dear
Friends of The Painted Turtle,
The
Painted Turtle is thrilled to announce the re-opening of camp in 2014 and share
with you the 2014 Camp Calendar!
We
wish to thank you for your patience and support over the last several months as
we’ve navigated our way back from the damage caused by the Powerhouse Fire. We
know how disappointing it was to have a summer and fall without camp, but Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-18904903865291048632013-12-20T16:05:00.000-08:002013-12-23T16:12:30.612-08:00Thalassemia Patient and Family Conference 2014
A Day of Education and Fun...
You are cordially invited to a Thalassemia Patient and Family Conference.
When:
Saturday, January 18th, 2014 8:30 am
Where:
Children’s Hospital & Research Center Oakland
Outpatient Center, Basement Floor, Auditorium
744 Fifty Second StreetOakland, CA 94609-1809
Topics Include:
Thalassemia Research & Care Update: Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-79156103925758243372013-10-29T17:30:00.000-07:002013-10-29T17:30:27.234-07:00Celebrate The Holidays In Outer Space! Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-20160884208191419602013-09-24T15:38:00.003-07:002013-09-24T15:38:46.939-07:00Walk-with-a-Doc, Oct 19th in BerkeleyDid you know that walking as little as 30 minutes a day can help reduce the risk of diseases such as coronary heart disease, breast and colon cancer, and Type 2 diabetes? This simple exercise can also improve bloodpressure, enhance your mental well-being, and help you to live a healthier and wholesome life! That is why we at Walk with a Doc would like to invite you to the 1st Monthly Walk in Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-26167808016852467912013-09-18T22:38:00.000-07:002013-09-18T22:38:10.592-07:00Phi Delta Epsilon Blood Drive: October 8th at UC BerkeleyAnonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-60526326899458603592013-09-03T18:08:00.002-07:002013-09-03T18:08:52.642-07:00Thalassemia.com now on Social Media!Please bookmark our new social media websites:
Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-56911693716409728972013-08-05T15:48:00.004-07:002013-08-05T15:48:55.053-07:00Dr. David Weatherall to speak at Children's Hospital Aug. 19thPlease join us to honor Sir David Weatherall, MD, who will be receiving
the Wallace H. Coulter Award for Lifetime Achievement in Hematology. Dr.
Weatherall will be visiting Children's Hospital Oakland on Monday,
August 19th. He will give a lecture entitled "Inherited Hemoglobin
Disorders: An Emerging Global Health Problem" at 5:00 PM in the OPC
Auditorium followed by a reception inAnonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-74437709187265729392013-07-02T17:31:00.002-07:002013-07-02T17:33:38.038-07:00Public hearing on behalf of CREAM, tonight at 7pm in Berkeley
CREAM (CreamNation.com) - a Berkeley ice cream sandwich institution needs our help. CREAM has been a huge supporter of the Thalassemia program at Children's Hospital Oakland in the past year: donating desserts to the Thalassemia holiday party, running a blood drive, and donating to the benefit concert at UC Berkeley.
Please read the attached letter of support and contact the Berkeley Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-1071882051301864522.post-36390808870030354162013-06-11T18:19:00.003-07:002013-06-11T18:22:16.058-07:00May 2013 issue of Perspectives newsletterThe May 2013 issue of Perspectives is now online. If you would like a free print subscription, please sign up here.
Anonymousnoreply@blogger.com0