May 7, 2013
World Thalassemia Day
Tomorrow, May 8th, is International Thalassemia Day. Children's Hospital Oakland has the largest Thalassemia Center in the United States, and is internationally recognized for its comprehensive care model and its leadership in thalassemia research.
The Northern California Comprehensive Thalassemia Center has collaborated with national radio networks to highlight International Thalassemia Day -- including USA RADIO NETWORK (National), WJSS-AM (Baltimore), WXBR-AM (Boston), LET’S JUST TALK (Syndicated), NORTHERN NEWS NETWORK (Montana Statewide), WHCR-FM (New York) / KDEE-FM (Sacramento), NORTH CAROLINA NEWS NETWORK (North Carolina Statewide), WAMV-AM (Roanoke), WDIS-AM (Boston), WYYZ-AM (Atlanta), WWTR-AM (New York), AMERICAN URBAN RADIO NETWORK (National), KPQ-AM (Seattle), EASY 96 ONLINE, WFIN-AM (Toledo), IT’S YOUR HEALTH (Syndicated), National Vietnamese radio interview (with Children’s Hospital resident Dr. Mylinh Nguyen).
We would like to thank Dr. Mylinh Nguyen for her important contribution in educating the Vietnamese physician and patient communities.
We appreciate your support for the 12th Annual Children's Hospital Oakland blood drive for Thalassemia, and UC Berkeley's Thalassemia Awareness Day. The blood drive will take place tomorrow (Wednesday) from 8am to 1pm (as coordinated by Laurice Levine) in front of the Children's Hospital outpatient center.
Soon, Children's Hospital Oakland in collaboration with BluebirdBio will be initiating experimental gene therapy for E Beta thalassemia. We look forward to curing this disease and improving the lives of those affected.
Elliott Vichinsky, M.D.
Director, Northern California Comprehensive Thalassemia Center
May 2, 2013
Please come donate blood at the 12th Annual Blood Drive for World Thalassemia Day
Wednesday
May 8th: 9am-2pm Blood mobile in front of the
OPC
A
personal note from a thalassemia patient and a CHO colleague/blood drive
coordinator:
I am 40-year old person with thalassemia – my life has
depends on blood transfusions and I have
received approximately 720 units of blood in my lifetime. If it were not for
blood donors, I would not be writing this message.
Giving back and replenishing the blood supply so that people
whose lives depend on blood can continue to be productive members of society,
is a vital part of my life. 95% of the
population will need blood in their lifetime.
This is my 12th drive to honor World Thalassemia
Day – I easily collected 50 units of blood
in my early drives, but the past five years have been a challenge – I am
not sure if it is that we can no longer use the OPC to hold the drives; an
inability to advertise as much, or general lack of interest. Now it is a miracle if we collect 20 units of
blood in a 5 hour drive. It is sad – and scary!
A plea to CHRCO/CHORI Staff/Volunteers/Friends:
please consider renewing your motivation to come and donate blood or if you
have never donated please join us. Let’s collect at least 30 units in honor of
every child and adult who needs blood to live.
There will be a raffle and prizes – and most of all you can
walk away knowing you saved a life.
For an appointment to donate please go to
www.bloodheroes.com
Click “Donate Blood” and enter Sponsor Code: LCHO
For questions contact Laurice Levine at 510-428-3885 ext.
5427 or by email at
Thank
you!
--Laurice Levine
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